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Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! It has definitely been a rocky road at times. Just trying to figure out what was wrong with me took years. Treatment has thus far been unsuccessful. This is my story of my journey, what medications I've tried and their affects on me, and what I do to cope with this disorder. I hope to meet others with CMS and hear their stories, and maybe find ways that we can help each other out!
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